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PiSCE – Pilot project on the promotion of self-care systems in the
European Union

The Platform of Experts

The goal of PiSCE was initially the creation of a Platform of Experts in self-care and healthcare. The Platform was originally created by the Dutch CBO, that sadly closed September 2015. The project and platform has since been led by the Danish Committee for Health Education.

The Platform of Experts was composed of cross-functional stakeholders with expertise in self-care – healthcare providers, patient groups, healthcare professionals, academics, communication experts and other relevant stakeholders with experience in policy making both at EU and national & regional level (ground level expertise).

The group has a balanced geographical coverage and consists of 23 experts;

Alan Quirk, RCP Centre for Quality Improvement
Ales Bourek, Mazaryk University
Basia Kutryba, Qveritas
Bo Bergman, Chalmers University
Charan Nelander, DCHE
Cristina Cabrita, BEUC
David Somekh, EHFF
Gustavo Maranes AESGP
Herwig Ostermann, GÖG
Ian Banks, EMHF
Jacqueline Bowman, Third-i
Jacques de Haller, CPME
Jamie Wilkinson, PGEU
Jeroen Havers, Vilans
Jim Phillips, ENOPE
Kaisa Immonen-Charalambous, EPF
Kristina Zgodavova, TUKE
Kristine Sorensen, Global Health Literacy Academy
Maria Merce Rovira Regas, EIWH
Piera Poleti, CEREF
Rosa Suñol, FAD
Rotar Pavlic Danica, EFPC
W. (Wilma) Otten, TNO

The Project 2014-2017
The main aim of the Project on the promotion of self-care systems in the European Union (PiSCE) was to promote self-care and healthcare.

This was to be accomplished through the following work packages:

  • WP1 Guideline on the promotion of self-care
    A guideline on how to promote self-care within the EU taking into account the outcome of the cost benefit analysis of self-care systems (EAHC/2013/Health/ 26) in the EU and the study of transferability of best practices.
  • WP2 Guideline on the development and production of communication tools
    A guideline to help Member States and stakeholders to develop and produce communication tools on self-care. This guideline should amongst other things describe the information needed in a communication tool and the optimal way to present it to get a better understanding of the content by the patients.
  • WP3 Report proposing actions and collaborations on self-care at EU level
    Concrete proposals for policy actions and collaboration at EU level on self-care which will give an added value in supporting the broader implementation of effective self-care. In the process, the above mentioned cost/benefit analysis and the outcome of the call for tender in work plan 2013 of the Health Programme (2008-2013) “Empowering patients in the management of chronic diseases” (EAHC 2013/Health/04) will be taken into account.
  • WP4 Closing/concluding conference
    A closing/concluding conference on the discussions and outcome of the work of the Platform to be organised at the beginning of 2016 – eventually held in March 2017.
  • WP5 Creating a Platform of experts in self-care
    In this project, an important step will be taken to enhance self-care at EU level and to develop strategies to support the broader implementation of effective self-care. A Platform of experts in self-care has been created that will be involved in the development of the deliverables mentioned above.

The project reunited several centers of expertise in various fields and backgrounds relevant for self-care. The stakeholders engaged provide a solid ground for the EU policy-making process on self-care as the group altogether is representative, holds relevant expertise and is synergic through its networks. The consortium expertise covers areas such as health promotion, health literacy, health education, self-care, self-management, patient empowerment and quality of care with the capacity to combine feasible research scenarios with professional practice and EU policy-making.

This includes patient and consumer representatives (EPF and BEUC), professional representatives organizations (CPME, RCPsych, V&VN, PGEU and EFPC), experts in health education (TNO, GÖG) and health literacy and patient empowerment (Global Health Literacy Academy, ENOPE, Third-I, EMHF, EIWH), pharmaceutical representatives (AESGP), universities (FAD, Masaryk University, Chalmers University, Kosice University and CEREF), policy making (EHFF and Qveritas) and expertise in the field of self-management and translation of knowledge (DCHE). Other experts and organisations have been involved in several stages. The project was financed by the European Commission (DG SANTE).